Thursday, February 6, 2014

What? An actual update?!?!?!

I know, I know....I am HORRIBLE at blogging.  But trust me...we have been BUSY!!!  I don't know where to even start?!?!?!

I guess my last post was back when Curves did the fundraiser for Lifeline of Ohio!  The great news is that we raised over $1000!!!!  It was amazing!!!

I feel like there is so much that has happened lately that I don't know where to even begin to update! 

Since then Alice has stopped working at Curves (sad) because I have taken on an additional role at the school I teach.  I am now the director of our before and after school program along with teaching first grade and I am now the Department Head of our Technology and Practical Arts department at our school.  It makes for long hours (6:45am-6:00pm) but I really enjoy working with the kids!  I REALLY miss the workout but I know I can go anytime to workout (it's finding the time to workout is the problem!)

I has also been pretty busy with my photography!  I have been able to capture some family and infant shots and have done 6 photo shoots in the past few months!  (that is a lot for me!) I was even able to capture my first 20's themed party!   I love it!! 

David is still super busy at work with lot's of O.R. cases!

He is still able to do Dialysis at home but has to be on his machine for 11 hours every night.  This is a change from his 9 hours he used to be on.  It is an adjustment and to be frank a pain in the rear at times, but we are still so thankful we can do this at home and not have to go to a center 3 days a week and get poked with huge needles! 

People ask us often "Where is David on the list for a transplant?"  Well that is a hard question to answer because we really don't know.  He has "served his time" so to speak on the list and "should" be close to getting one.  But he is a very hard tissue type match and we really don't have an answer to "when" he will get a transplant.

He is technically on two lists currently.  One being the deceased donor list (when someone dies and donate their organs), and the other is the Pair Donation List.  This is basically a list where David has a friend who has GRACIOUSLY chosen to donate her kidney to him.  However she does not match him so she has agreed to donate to someone else who may have a candidate who would match David.  This can be done between two people or through a whole chain of people.

  Either form of donation is a waiting game.  The time frame is unpredictable.  Sure we have been given "estimates" but David and I have learned not to dwell on those estimates because we need to enjoy life as much as we can and not dwell on time.  I am sure people are sick of hearing the answer that we don't know where he is on the list but that is the honest truth.  I would LOVE to give a more specific answer, but for now that is all I have to offer.

We also have experienced what could have been a major catastrophe at home a few months ago, but God is good and HE provided exactly what we needed.  Two days before Thanksgiving our furnace went out and upon having someone come look at it we learned the WHOLE thing needed replaced.  After one cold night at home it was apparent we were not going to be able to stay at our house and my parents graciously allowed us to temporarily move in with them.  A lot happened to figure out what was wrong with the furnace and what really needed replaced and MUCH PRAYER and offering by others and we now have a brand new furnace (inside and outside unit).  PRAISE GOD!!  We were with my parents for about 2.5 weeks but we are now home and SO BLESSED by all who helped us.

There is so much more that has happened since my last update but time is getting away from me.  I will TRY to be more consistent in updating because I know there are many who care about us and David's health and I want to keep everyone in the loop.

Thank you always for your prayers and support...we love you all!

David and Alice